GI update by RaisingJoey in Chit Chat (Down Syndrome). I took Joey to the GI doc today and the good news is, Joey DOES NOT have celiac disease!!! I am so relieved!!! And his GI doctor is one of the nicest doctors I’ve ever met! She is awesome! But now, I have to take him in for more testing to rule out other problems. I also have to cut his juice intake down majorly to one cup a day to see if that makes a difference. She’s also having us give him pediasure to give him some extra nutrients since he doesn’t eat solid foods. She is setting us up with a nutrionist to go over his diet in more detail. We also have to take a 3 day calorie count of what he eats, fun, fun. We made an appointment for Joey to get an upper GI done on the 23rd in Hartford at CCMC. Hopefully that will give us some answers…
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Topics : Down sydnrome , GI, nutrition
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I'm so happy for you! We had to avoid wheat for 3 years with my son and it was soooo hard. yaaay for pretzles, bread, and crackers. Hope the next appointment goes well.

Flourish
POSTED ON 10/24/2008

We had some problems with my daughter also. You may want to suggest checking thyroid. Lots of our children have thyroid problems. Ours was cured with a small pill a day. Good luck! I wish you the best!

Lorifrombucktown
POSTED ON 10/29/2008

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GI update

Topics : Down sydnrome , GI, nutrition

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